Wednesday, November 28, 2007

From WSJ: In case of a psychiatric emergency, read this:

Before there were living wills, people were just left to die.

And if they had a mental illness, they were left to suffer.

Now - as noted in this entry from the Wall Street Journal's Health Blog - there is a movement to prevent either situation from reaching a crisis point.

And, as the blog noted, it was the Terri Schiavo case that highlighted the importance of giving family directives on what to do when patients are unable to communicate their wishes.

The piece, entitled, "In Case of Psychiatric Crisis, Read This," talks about Psychiatric Advance Directives, or PADs.

It notes: "PADs are legal documents that patients can prepare to state in advance of an acute psychiatric crisis what medications, hospitals and other treatments they would prefer or like to avoid.

Twenty-five states have laws allowing PADs. In North Carolina, a sample form includes such items as preferences about electroconvulsive therapy, or ECT, and tips for medical personnel on how to minimize the use of restraints or seclusion. A model form in Texas lays out details on a patient’s consent, or lack of it, for specific medications. A Michigan form guides a patient in legally designating a personal advocate in case of crisis.

But how are PADs actually used? And what happens if, in the breach, a doctor’s judgment clashes with the stated wishes of the patient? The Health Blog asked medical sociologist Jeff Swanson from Duke University, who’s been active in research on mental health policy and treatment options for people with serious mental illness.

First, Swanson laid out a key difference between the advance directives for psychiatry and those typical for medical care. A living will focuses primarily on “forgoing unwanted treatment,” Swanson said. “The goal of the psychiatric advanced directive is to [help you] recover. You’re trying, in a way, to protect yourself from decisions you might make when you’re ill.”

Swanson explained that an advance directive helps people to maintain some autonomy when they otherwise lose their ability to decide. But there can be legitimate questions about whether patients are thinking clearly when they create PADs, or what to do if they say later that they don’t want to follow their PADs, he said.

Though PADs are legal documents, most state laws on the subject contain override clauses, Swanson said. In a crisis, a doctor can invoke his or her clinical judgment to act in the best interest of the patient, essentially ignoring the PAD. Empirical data are hard to come by. But “clinical experience and anecdotal reports suggest that overrides occur with some frequency,” according to a commentary Swanson published last year in the Journal of the American Academy of Psychiatry and Law.

Are PADs worth the trouble then? Some psychiatrists have wondered if it would make more sense to draw up a crisis plan, rather than a legal document, to guide treatment.

Swanson, who has conducted quantitative and qualitative research on the topic, said that some patients say that even if their directives aren’t followed, they still feel the documents give them respect within the mental health system. “Just the fact that someone needs a legal document for respect is telling,” Swanson said."

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