Tuesday, January 27, 2009

Postpartum depression treatment gets a second chance

By SUSAN DOWD STONE
Featured Blogger

U.S. Senator Robert Menendez, D-N.J., has reintroduced postpartum depression legislation in Senate.

Today, I had the joy of participating in a conference call with the office of Senator Menendez and the other organizational sponsors of The Melanie Blocker Stokes MOTHERS Act where we received the heads up that U.S. Senator Robert Menendez was hoping to reintroduce the bill today. And as of this afternoon, that is exactly what he has done!! For hundreds of thousands of American mothers and families, this renews the hope that 2009 will indeed be the year when Congress acknowledges our nation's mothers by addressing the full spectrum of maternal experience and finally passing this legislation.

The statistics we have on the numbers of women suffering from perinatal mood disorders (which range from 12 to 22 percent in the research) easily exceed the incidence associated with a public health crisis. And remember, these statistics, do NOT include the suffering of women who miscarry, endure stillbirths, give up babies for adoption or terminate pregnancies, all of whom are also susceptible to these devastating disorders and whose circumstances are included in the furthering of research and support being sought.

It is not too soon to begin contacting the senators in your state to let them know you support this long overdue legislation!! And while you are at it, feel free to express your support to U.S. Senator Robert Menendez for whose steadfast determination we are so very grateful.Thank you to Senator Robert Menendez and the bill's other leading cosponsors, Senators Richard Durbin, D-Ill., and Olympia Snowe, R-Me.

If your organization would like to become a sponsor of this crucial bill, please contact Emma Palmer in Senator Menendez's office at 202-224-4744.

Please visit again soon for the link to an online petition which will be available across the country.

The latest copy of the The Melanie Blocker Stokes MOTHERS Act, follows the official press release below!

COMBATING POSTPARTUM DEPRESSION: SEN. MENENDEZ BEGINS PUSH IN 111TH CONGRESS

MOTHERS Act reintroduced in Senate, was close to passage last year

WASHINGTON – U.S. Senator Robert Menendez, D-N.J. on Jan. 26 officially kicked off his efforts to secure an increased federal commitment to combating postpartum depression by reintroducing the Melanie Blocker Stokes MOTHERS Act in the Senate. The legislation, which is co-sponsored by Sens. Richard Durbin, D-Ill. and Olympia Snowe, R-Me., has support from Senate leadership. It was nearing passage last year, despite being blocked from a vote on the Senate floor by Senator Tom Coburn, R-Okla., who has objected to this and other bills targeting specific diseases on ideological grounds.

“We gained significant support for this effort to combat postpartum depression over the last two years, which makes me optimistic that we will be able to deliver this gift to new mothers,” said Senator Menendez. “Increasingly, my colleagues in the Senate are learning about the vicious, debilitating nature of postpartum depression and how it affects families, and they understand why this initiative is so important. We have to attack postpartum depression on all fronts – with education, support, and research – so that new moms can feel supported and safe rather than scared and alone.”
Postpartum depression is a serious and disabling condition affecting hundreds of thousands of new mothers each year. The new legislation would increase federal efforts to combat postpartum depression by:

* Encouraging Health and Human Services (HHS) to coordinate and continue research to expand the understanding of the causes of, and find treatments for, postpartum conditions.
* Encouraging a National Public Awareness Campaign, to be administered by HHS, to increase awareness and knowledge of postpartum depression and psychosis.
* Requiring the Secretary of HHS to conduct a study on the benefits of screening for postpartum depression and postpartum psychosis.

* Creating a grant program to public or nonprofit private entities to deliver or enhance outpatient, inpatient and home-based health and support services, including case management and comprehensive treatment services for individuals with or at risk for postpartum conditions. Activities may also include providing education about postpartum conditions to new mothers and their families, including symptoms, methods of coping with the illness, and treatment resources, in order to promote earlier diagnosis and treatment.

It is estimated that postpartum depression (PPD) affects from 10 to 20 percent of new mothers. In the United States, there may be as many as 800,000 new cases of postpartum conditions each year. The cause of PPD isn’t known but changes in hormone levels, a difficult pregnancy or birth, and a family history of depression are considered possible factors.

The Melanie Blocker Stokes MOTHERS Act, sponsored by Senator Menendez and Representative Rush, will help provide support services to women suffering from postpartum depression and psychosis and will also help educate mothers and their families about these conditions. In addition, it will support research into the causes, diagnoses and treatments for postpartum depression and psychosis.

Thursday, January 15, 2009

Being of sound mind means being free of illness

To me, having a mental health issue means something more than dealing with a diagnosable illness.


It's all about maintaining the right quality of life, protecting yourself from disease and not having to fear that death is at your door.

If we were to expand the definition of mental illness in such a way, then the continent of Africa is suffering yet another epidemic - only this one is of the mind.

It's mental disease brought on by the scourge of AIDS that, despite medical advancements, is still killing hundreds of thousands of people each year.

At the same time, it's turning hundreds of thousands of children into orphans, as well as many others motherless and fatherless every day because of the deadly disease.

In the wake of their dead loved ones, many are suffering from witnessing the spectacle of people who once led robust lives only to be destroyed by a disease that took their life away long before they were dead.

Perhaps no book captures that struggle more - as well as the hope offered by those fighting to save Africa from the disaster - than There Is No Me Without You: One Woman's Odyssey to Rescue Africa's Children by Melissa Fay Greene.

The story revolves around Haregewoin Teferra, an Ethiopian woman who has welcomed people of all types - particularly youthful victims of AIDS, many of them orphaned - into her house to talk, eat and, usually, stay for a while until they seek stability, care and love.

In the opening scene, Haregewoin got a call about an abandoned child. She was inundated with children already. But the mother had AIDS and the dad, TB.

No, she said initially. But Haregewoin quickly changed her mind. Over and over again, Haregewoin's objections almost always disappear after some reflection. To Haregewoin, humanity always triumphs over convenience.

This is what happens in Ethiopia, where disease has forced a population that once lived in civility to lean on others - even if they're sick, too - for support. It was under colonial rule but broke free from the Italians in the 19th Century, largely because people felt proud about their country and their leadership.

Dictators took over and selfishly raped the landscape for their own benefit, Greene noted. The rest of the hard-working country suffered as hunger, poverty and lack of education all soared. Places that were once lush with forests and other resources were suddenly deprived of water and oxygen.

Greene, who lived the life of a soccer mom, read about this situation in The New York Times and wanted to do something about it. She eventually found herself with a book contract, and then flying to Ethiopia to watch Haregewoin do her work and see the sides of her that were truly heroic yet deeply human.

Haregewoin didn't even like talking about herself. She was too distracted by the children she had to save.

One boy, named Misty, was removed from his dad after he was constantly promised that he would be able to bring biscuits to him later on, but there was no follow through. He had to stay with Haregewoin and the taxi driver who brought him to Haregewoin's compound, and he did his best to calm him down despite the boy's cries of panic.

Haregewoin had lived the middle class life, too, only to see it disappear because of the epidemic.

She married a man named Worku and they had two children - not 20, like the family she came from. Haregewoin worked for a computer company and Worku was a high school principal, so they were educated, and they didn't want to go down the same path of living with a too-large family in a too-small house.

Then Worku surprisingly died of a heart attack - even though he appeared to be healthy. Soon after, one of Haregewoin's two daughters rebelled, got together with a security guard who acted thug-like, but still ultimately married her.

Haregewoin had a sudden back problem that she thought was cancer, so she went to Cairo to get it checked out. It turned out to be no big deal, but she liked Cairo and stayed - despite being far away from her family while it was falling apart.

Haregewoin started to worry when her daughter, in telephone conversations, complained about feeling tired. It turned out she was pregnant, but her complaints persisted. Hargewoin finally went to visit and found her somewhat emaciated, but she just thought it was because of the pregnancy.

Her daughter had the baby, and everybody celebrated. But the daughter became more of a recluse, and her husband put up a barrier between Haregewoin and her daughter that prevented Haregewoin from knowing too much.

Frustrated with the situation, Haregewoin eventually went to visit again, and found her daughter suffering from what appeared to be AIDS.

Haregewoin's son-in-law, Ashibr, took the baby away; Haregewoin cared for her daughter at a hospital and, later, at home, where she died in 1998.

Haregewoin was devastated. She went into seclusion, shunned people and thought about becoming a full-time mourner.

Only a religious group stood in her way, and asked her to take care of two teenage children. Haregewoin intially didn't think she could do it, but she did it - much to her friend's dismay - because she couldn't say no.

The children were rebellious - especially Abel, who was a drug addict. Those children were eventually taken away. But Haregewoin's willingness to take them in inspired religious groups to seek her help again. Other smaller children were dropped off, and the emptiness Haregewoin felt after losing her daughter quickly disappeared.

Virtually all the children had parents with AIDS or had died of AIDS. There were twins; there were even children with AIDS. One mother dropped off her baby, fell down and died just outside Haregewoin's door as she left. Even the police dropped off unnamed, abandoned children.

Haregewoin saw this as her calling - and even hung a picture in her house of her deceased daughter holding her newborn child with an inscription from a pop song: "There is no me without you."

The children, meanwhile, played in the yard and with each other, and then went to school and played soccer. One man dropped off his sick daughter just so she could socialize.

A group dropped off a young girl who hated being there, and wanted to prove it so badly that she repeatedly slammed Haregewoin's steel door, trying to get out. People on the other side of the door - the people who dropped her off - were crying. The author, who witnessed this scene, thought of offering the group money, but decided against it.

There were other troubles, too, that had nothing to do with disease.

An uncle Oscar who was involved in the life of a pair of twins came around, and Haregewoin blocked the door. Before this encounter, Oscar once pulled down the pants of one girl, and tried to rape her. He was caught, and he took off the hills. But he tried to re-enter their lives, and Haregewoin wouldn't allow it.

Overall, Haregewoin enjoyed the experience. But eventually, it took its toll. People in the area shunned Haregewoin and her children. They didn't want to come into contact with people who have had some association - even remotely - with AIDS.

Money was tight, and Haregewoin began taking donations. She told people she couldn't take any more children, but she did anyway, because she couldn't say no.

Children like Minty held out hope their parents were still alive. Minty, for instance, was hording rolls that he wanted to give to his father - even as they grew moldy and disgusting. He still wanted to give them to his dad, Eskender.

But Eskender, Haregewoin soon found out, died.

Haregewoin eventually grew weary. She saw her numbers grow from two dozen to three dozen children. She told people, "No more," but they came anyway.

Suddenly and hopefully, adoption groups approached Haregewoin. It was just the right time, because Haregewoin couldn't be the mother she was when she had fewer children.

She also needed a doctor - and she found one, an American who gave up his life for this cause. He examined a baby who was literally "dropped" at Haregewoin's house, and whom everybody thought had AIDS. The doctor discovered he actually had a milk allergy. He was given soy milk and became a normal, everyday child.

Adoption agencies eventually came out of nowhere, taking away babies left and right. Haregewoin grew attached to some of the children and didn't want to give them up. But she relented, realizing that others could provide a better life.

Haregewoin found a place for the older kids, too - the Americans, who had set up a local agency that found parents for the children.

A rich woman had a birthday party at Haregewoin's compound. She wanted her pampered child to see poverty. For a day, everybody - including Haregewoin - felt like they were in the middle of a fairy tale.

Haregewoin eventually developed something of a celebrity status in Ethiopia. She won an award that earned her a trip to the United States, the same country that provided shelter to companies who refused to allow generic anti-AIDSs drugs to be developed and cheaply sold and used in Africa, Greene noted

For Haregewoin, however, success didn't come without new struggles.

People started to resent her, and believed that she was getting rich off her good work. They started to snipe at her. An agency was upset with the way she handled the adoption of a girl who was presented by a 17-year-old mother. When the 17-year-old took the child back after much wrangling, the government investigated Haregewoin for child trafficking.

An investigation into a possible rape at Haregewoin's compound lingered for months as rumors began to spread about mistreatment and child-trafficking. Donations and adoptions stopped coming. The children were getting smaller meals.

Ultimately, Haregewoin was arrested and locked away, like she was a political prisoner. Her surviving daughter and friends tried to spring her loose, but Haregewoin viewed her time away as an opportunity. It gave her some moments to reflect, as though God led her here.

In early 2006, Haregowein was back home. The Ministry of Justice took over control of her orphanage, and also cleared Haregewoin of any wrongdoing.

She also reacquainted herself with her grandson, then 7. Ashibr relented after prodding from Haregewoin's surviving daughter. They developed a regular relationship, all while Haregewoin continued taking kids in.

But it was her time in jail that gave her the moment to realize her work was her gift to life.



Tuesday, January 6, 2009

Some men wallow in misery; others rise from depression and create change

As America prepares to swear-in its first African-American president, seminal figures whose names don't trigger instant recognition the same way as Barack Obama or Martin Luther King Jr. do - but are heroes to many, nonetheless - come to mind.

There was Richard Wright, who captured the struggle of racial oppression in the prison system nearly two decades before the civil rights movement with his 1940 novel, "Native Son." There was Don Haskins, the coach of Texas-Western who started an all-African-American team against the racially exclusive University of Kentucky basketball team in the 1966 NCAA championship, and won.

Others may say, "Dig deeper, and you'll find more." I'm reading books that capture the civil-rights spirit of people who I've struggled to find on Google search lists (why is that, anyway?). But some argue they've done more for their neighborhood, their community and even their country than many of the today's civil rights leaders who seem to consider appearances on television news programs and talk shows to be a greater priority than the cause.

Few men learned the art of coping, and successfully converting tragedy into hope than Orlando Gober, a former Black Panther and deceased former principal of Rice Catholic High School in Harlem.

Orlando is the central figure of a new book, "The Street Stops Here:A Year at a Catholic High School in Harlem." The pages speak of a man who harnessed the energy of depression and loss into a mission of saving African-American children not only from the streets, but also from themselves.

Orlando was a young up-and-comer in 1985 whose young career as a high school principal was almost cut short when an asthmatic child who accompanied him on a field trip - and tested herself by embarking on a long-distance hike - died in his arms. Gober survived weeks of depression and declined physically, becoming a diabetic.

But he stayed at the New York City private school, St. Mark's, until he moved to Rice High School, where he became dean of students in the early 1990s. In 1999, at 46, he became a principal at Rice, one of the few African-Americans at the time to head a Catholic High School in the country.

While there, he left a mark that few other people could, inspiring hundreds of African-Americans with the force of his personality and his presence. When Gober spoke, everybody did more than listen. They were empowered.

And the 1999-00 school year would be the year that Gober made his biggest impact, before more tragedy would bookend a career full of ups and downs. That year, instill promise and hope in the minds of hundreds of African-Americans by imploring the importance of his mission: Getting an education.

Orlando was a big man who was no-nonsense talker and leader. He demanded that people not use his school as a babysitter, as so many parents do. He wanted them to show up for admission interviews with the principal with the idea that, when they were to leave Rice, they would have more than just a piece of paper in their hand. They would be better, smarter and mature young adults. Most who showed up for the interviews accepted his mission; those who didn't were shown the door.

Most of his staff accepted this mission, too, even as some butted heads with Gober continuously, and viewed his strong-willed character as stubbornness that seemed to trump fairness. Those who stayed around, however, believed Gober's positives greatly outweighed his negatives.

One who stuck around was a man known as Brother Walderman, who had been at Rice long before Gober's arrival. He was a more liberal elder of the Catholic order, a product of Vatican II. He constantly reminded people that his school was about providing a religious education but, more importantly, producing results. He frequently rolled off the list of successful people who graduated from Rice, including bank executives, basketball player Rod Strickland and a prominent member of Run DMC.

Even with all this support, however, going to the next level was always a struggle for many of the kids. Many dropped out; graduation class sizes were small - usually around 100 or less. The students always had to balance the demands of their neighborhood with what was good for them. When some students were former or active drug pushers, it was hard for the staff - and for the students themselves - to steer to the right path.

But Orlando was a powerful leader, and people knew that - particularly parents, and enrollment increased when he was put in charge. Slogans from him were everywhere, either frequently repeated by the students as they sat in class, or posted on the walls of the hallways. Kids entering this place understood that they were going to be disciplined if they crossed the line - and they had to leave the street behind them, slipping on uniforms and slipping off other clothing wear that the school viewed as troublesome.

Orlando, who saw race in virtually all things, employed his brother as a teacher, but his closest bond is with Chris Abbasse, a former partier who reformed himself and advocated in discipline. The two butted heads frequently when Gober first arrived at Rice. But Abbasse learned how to work with Gober and, together, they were an inseperable and powerful force.

Orlando, meanwhile, had run-ins with teachers who were as strong-willed as he is. One, in particular, was a science teacher who refused to do lab because, in his view, the students were not up for it. Orlando replaced him before the 2000-01 year with somebody more inferior, a teacher who ended up quitting after a few months. But the move was made for one reason: He didn't accept Gober's mission.

Other teachers were inexperienced. The math teacher was clueless, but math teachers were a dime a dozen, and Gober did his best to work with employees who were struggling but were considered necessary.

Many teachers left after only a year or two - and not just because of the pay. Orlando was overbearing, and some got an earful whenever they didn't see things Gober's way.

The students got an earful, too, but Orlando almost always mixed harsh words with compassion.

Gober always felt like a cloud was over his head: Losing people to the streets was like death. He didn't want to lose another one like he did in 1985.

Still, at the beginning of the 1999-00 school year, Orlando was not happy with freshman class. Early on, he chewed them out in classroom after classroom. Eventually, they caught on - and accepted his mission and purpose - just as they did at every school that employed Gober as an administrator.

Gober excelled in his first teaching job in the 1970s, but was taken aback when St. Mark's intiially treated him poorly. He went on to become a principal at another school but, ironically, went back to St. Mark's to become an administrator. The school at the time was afraid it was going to close; by the time he left, Gober doubled the enrollment.

Gober was married and then divorced, but he was more married to his work. He practically adopted some students, while he closely monitored others.

Some came in looking "gangsta," but he straightened them out through schooling and inspiration. Though he was diabetic, and despite having a poor diet and sometimes missing meals, Gober lived for these students and got them to work.

He also found time for fun. In 1999, Rice had its annual "Rice Jam," which went pretty well, save for a few flare ups. One student, named Larry, struck Orlando in the face. But, despite his reputation for toughness, he didn't expel him. Instead, Gober viewed it as youthful stupidity that wouldn't last.

Gober, in particular, had a good relationship with a student named Yusef, who didn't have a father and dealt drugs. While drugs exploded in the 1980s but tailed off in the 90s, Yusef tried to make a go of it as a way to support himself and his family. While at Rice, however, Yusef gave up the street life and bonded with Orlando better than anybody.

Other students bonded with the staff. One student, named Linwood, was smart but hyper. His dad was in jail, and he couldn't calm down. Linwood did well in school but not on his SATs. He bonded with the guidance counselor on his own volition, practically barging through the man's door whenever he wanted to see him. Others don't show that kind of initiative.

Ironically, few students from this school have gone to big places. Two boys made it to Columbia University once, but dropped out after their junior year. But graduation was viewed as the main, all-encompassing goal.

During the 1999-00 school year, teachers often complained about Orlando behind his back. They said they lost some of their best teachers because he forced them out. But Gober excelled at diffusing controversy by employing his skills as a showman.

During one gripe session, for instance, Gober burst into the middle of it and announced that Rice was a Vanguard school. The conversation was over; the celebration for the accomplishment began.

Gober believed that students - the poor ones, in particular - came first. He saw it as a connection to origins of Catholic schooling in the United States, when Irish made up the underclass for a long time.

Catholics wanted to lift the Irish up, so Catholic schools became the vehicle. To Gober and others, however, that mission got lost at Catholic schools began to cater to the suburbs. The enrollemnt of the city Catholic schools went on the decline after peaking in the 50s and 60s. Gober and Walderman hoped to reverse the trend.

All that didn't prevent Gober from being tough on students - even as they considered it tough love. During the 1999-00 school year, Yusef was suspected of dealing drugs, and he was accused of stealing a hat. Even though he was a Gober favorite, he had to go. He treated "Gobe" like a dad, often going to his office just to put his head on his shoulder. Even after his expulsion, however, Gober found a way to help Yusef, placing him in a Bronx school.

By the end of the year, the students improved, overall, and people like Linwood defied the odds and graduate. The basketball team won the championship, but they were also good students - a high priority in Orlando's eyes.

Many were inspired by Gober's speeches and his talks in class. The former Black Panther often equated the academic struggle with the civil rights struggle, and implored people to read the works of famous black figures.

Even though Orlando's diabetic symptoms got worse during the course of the year, his presence was dominant. He felt rejuvenated by the praise he received at a prayer breakfast at graduation. But his willingness to sacrifice his own health for the sake of the students became inspirational and legendary.

Despite recommendations against it, Gober taught during the summer of 2000 when he should have been getting a rest. But his health dramatically declined in August, when his brother noticed that he was developing Gangrene.

One day, the brother found Gober in a coma in his apartment. Orlando barely survived but his leg was amputated.

Later, despite feeling ashamed that he let the problem go as long as it did, he truly discovered the impact he had on people. He received an enormous amount of well-wishng through cards and calls. During the 2000-01 year, the school hung on even while he wasn't not there, doing work from his hospital bed. He made a triumphant return at the 2001 graduation, and he returned full-time as principal in September.

Physically, however, he was never the same. He became thinner and less mobile, and he was unable to impose his will in the same way. He was unable to connect with people as much. He was finally - and mercifully - dismissed in 2003, and then scouted around for jobs.

Then he suddenly died on the first day of school in 2005 - a month before the 20th anniversary of Samantha Brown's death, the girl who died in his arms.

But, as noted in The Street Stops Here, many now say they wouldn't have lived past their own struggles without Gober behind them, coaching them through times of trouble and triumph.